Governing medical knowledge commons / edited by Katherine J. Strandburg, Brett M. Frischmann, Michael J. Madison. - Cambridge, U.K. : Cambridge University Press, 2017. - viii, 429 p. - Cambridge studies on governing knowledge commons . - Cambridge studies on governing knowledge commons. .

Includes bibliographical references.

1 - The Knowledge Commons Framework / By Katherine J. Strandburg, Brett M. Frischmann, Michael J. Madison -- 2 - Leviathan in the Commons: Biomedical Data and the State / By Jorge L. Contreras -- 3 - Centralization, Fragmentation, and Replication in the Genomic Data Commons / By Peter Lee -- 4 - Genomic Data Commons / By Barbara J. Evans -- 5 - Population Biobanks’ Governance: A Case Study of Knowledge Commons / By Andrea Boggio -- 6 The Sentinel Initiative as a Knowledge Commons / By Ryan Abbott -- 7 - Cancer: From a Kingdom to a Commons / By Michael Mattioli -- 8 The Greatest Generational Impact: Open Neuroscience as an Emerging Knowledge Commons / By Maja Larson, Margaret Chon -- 9 - Better to Give Than to Receive: An Uncommon Commons in Synthetic Biology / By Andrew W. Torrance -- 10 - Governance of Biomedical Research Commons to Advance Clinical Translation: Lessons from the Mouse Model Community -- By Tania Bubela, Rhiannon Adams, Shubha Chandrasekharan, Amrita Mishra, Songyan Liu -- 11 - Constructing Interdisciplinary Collaboration: The Oncofertility Consortium as an Emerging Knowledge Commons / By Laura G. Pedraza-Fariña -- 12 - The Application of User Innovation and Knowledge Commons Governance to Mental Health Intervention / By Glenn Saxe, Mary Acri -- 13 - Challenges and Opportunities in Developing and Sharing Solutions by Patients and Caregivers: The Story of a Knowledge Commons for the Patient Innovation Project -- By Pedro Oliveira, Leid Zejnilović, Helena Canhão -- 14 - Chronic Disease, New Thinking, and Outlaw Innovation: Patients on the Edge in the Knowledge Commons / By Stephen Flowers -- 15 - The North American Mitochondrial Disease Consortium: A Developing Knowledge Commons / By Katherine J. Strandburg, Brett M. Frischmann -- 16 - The Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR): An Emerging Knowledge Commons / By Katherine J. Strandburg, Stefan Bechtold -- Governing Knowledge Commons: An Appraisal / By Katherine J. Strandburg, Brett M. Frischmann, Michael J. Madison.

9781316601006 (pbk.) 1316601005 (pbk.) 9781107146877 (hbk.) 1107146879 (hbk.)

2017026021


Medical informatics.
Health attitudes.
Health behavior.

W26.5 / G684 2017

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